SPG 4 Denovo

“Navigating De Novo SPG4 Together.”

Together on the SPG4 Journey

Support, knowledge, and hope for families affected by

De Novo SPG4.

If you just received the diagnosis you have a million questions.

We are here to help.

Send your questions to spg4together@gmail.com.

We promise to answer.

You are not alone.

💖

This Is Grace. A gentle introduction to Grace’s world.

A beautifully illustrated story for families, friends, and caregivers learning about SPG4.

All proceeds go to research on SPG4!!

My Heroes, My Crew. Meet all those who help Grace rise each day and meet the challenges of living with HSP.