Understanding SPG4. Practical
information. Real support.
SPG4 Together is a patient-led platform providing clear, current information on Hereditary Spastic Paraplegia Type 4.
What is SPG4
A genetic neurological condition affecting movement and muscle control.
Real Life
Symptoms can appear from childhood to adulthood, affecting individuals differently.
Therapies
Progressive condition with varying severity and manageable symptoms.
What to do next
Choose the path that best fits your situation
You can help find a cure today.
It is critical for affected individuals, their families, and generous donors to help fund the research necessary to help find a cure. Through the generosity of selfless donors, we can help thousands of deserving children, adults, and their families that have been devastated by SPG4 Hereditary Spastic Paraplegia.
Featured Books
My Heroes,
My Crew
Meet all those who help Grace rise each day and meet the challenges of living with HSP.
by Spg4together
This Is Grace. A gentle introduction to Grace’s world.
A beautifully illustrated story for families, friends, and caregivers learning about SPG4.
by Spg4together
Updates and News
How Rare Disease Families Need to Start Rethinking How Cures Get Built For a long time, rare disease advocacy has followed a simple instinct…
- February 24, 2026
The Unfiltered Truth About Our Life With Grace I don’t think anyone really understands what our life is like. Not family. Not friends. Not doctors. Not even..
- January 26, 2026
When it comes to treating spasticity in SPG4, it’s not just about any physical therapy. It’s about a highly specific approach that focuses on opposing…
- September 10, 2025
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